AN UPDATE, LOVE, AND GRATITUDE

helloturtle
Hello Beauty Pups! I’ve missed writing here so much! I’ve been on the mend and I just wanted to give a small update to everyone. First of all, thank you so very much to those of you that helped, shared, and sent well wishes. I was beyond touched and have so much gratitude, thank you all so, so, so much. Truly, I love y’all. <3

cocohospital

My blockage was dislodged (god, I never ever ever want to go through that again!) and I had my endoscopy and colonoscopy. The endoscopy was clear, but the colonoscopy did come up with some polyps which were worrying. I don’t have the pathology report back yet, but my Dr did say I will have to have a colonoscopy every 3 years now since I’m way too young for polyps and they want to be on top of it incase the big C develops 🙁 It’s a scary thing to hear but I’m somewhat comforted by the idea that someone will hopefully be on the lookout for it. My next appointment is May 6th. The specialist did have a diagnosis for me, severe complete bowel disease 🙁 Basically if you’ve ever heard of IBS it’s like that but a little more hardcore since it effects my liver and gallbladder as well (hence the fucky blood levels!). It’s an autoimmune disease and probably falls under the umbrella of my lupus, which isn’t shocking. Right now I’ve been put on a very restrictive, hopefully temporary diet, but I will have to be on a special diet for the rest of my life. It sucks and I will miss so much comfort food, but honestly, it’s a journey I’m ready to go on. Getting healthy and living clean is now not just some passing resolution, it’s going to have to become a lifestyle if I ever want to get strong and back to normal again. And you know what? If I’ve been applying this philosophy to my skincare then it’s only right that I do it for my body as well 😀 Since this elimination diet, I’ve started feeling slightly better, but it’s a learning process. Trying to get enough nutrients is a struggle. I’m feeling nowhere near 100% yet, but I am really working hard to get there and getting stronger every day! My bilirubin levels are down to a more acceptable level (29) but still elevated so I hope that everything will fall into it’s rightful place soon!
Again, thank you so much everyone, you’ve brought me so much hope and happiness <3 I hope to return the favour <3
cocohospital2
I have absolutely no memory of taking this selfie OR putting the silly stickers on it lol, the hospital gave me the strong stuff 😉

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5 Comments

  1. I’m so glad that you’re on the mend! I adore your blog.

    Unfortunately, I’m no stranger to autoimmune disease- I have Hashimoto’s Thyroiditis and silent Celiac that affects my neurological system more than my GI system.

    A year ago I did a predictive antibody panel, which screens bunch of antibodies all at once and finds any that predict a high likelihood of developing different autoimmune diseases within about 7 years on average. It was pretty horrifying to see some of the high risk antibodies I had (ones for Crohns and/or Ulcerative Colitis, bleeding and clotting disorders, brain antibodies, etc). It’s just no joke.

    I’ve been working with a functional medicine practitioner for the last year who has me on immune modulating supplements and had me change my diet to the autoimmune protocol diet to calm my immune system and heal all the inflammation. It’s helped so much with my overall health (and my skin- nice bonus!).

    We did some advanced food sensitivity testing to identify any dietary immune triggers and gluten was the big one. She also tested for cross-reactions to gluten (where your immune system mistakes another food for gluten), and casein proteins (dairy) came back positive. Major bummer, but I’d rather know it was harming me.

    I’ve been focusing on reading about and connecting with others who have gone into remission from AI’s with diet and functional medicine and things like low-dose naltrexone and it’s been encouraging to see that people are really doing it.

    Good luck on your healing journey- I just wanted to pass along some hope that this is doable 🙂 Stay strong! xx

  2. So glad to hear you are doing better and have a positive game plan. Much hope and positivity to you!

  3. I’m relieved that you are feeling better at least and I hope that it will continue like that. You know I love your blog! And I love your positive spirits! Take care Coco ♥

  4. Glad things are improving for you, if slowly. And cute hospital picture!

  5. I just discovered your blog and love it.
    I hope you feel better soon!
    Maggie

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